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COVID forces us to keep our distance. But some of us were already used to being avoided.


Neighbors avoid each other on the street; parents tug away children by the arm. For people with noticeable differences, these were reactions pre-COVID.

Right before COVID-19 replaced every mundane concern with an overarching anxiety and fear few of us could have ever fathomed, I was reprimanding my husband John for once again purging things I still held dear that we no longer used.

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“Where are all the Strega Nona books? 'Sylvester and the Magic Pebble?'” I was irritated. I continued searching for our three children’s favorite treasures. I shouted from across the house. “Wait! I just found 'We’re Going on a Bear Hunt!'" It was thankfully hidden beneath our daughter’s bookshelf.

John attempted to defend himself. “C’mon, Meg. They’re teenagers.” To him the books had become clutter gathering dust. To me, they retained their intrinsic value representing a lost period — when our family was gathered together at home happily sharing time and stories.

Then, within a few days, the pandemic upended time, space and every interaction. As our family cocooned and formed a nuclear pod, we began to break the boredom with long walks through our suburban neighborhood after dinner each night. Although many neighbors we passed offered a wave, I quickly noticed a new normal.

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People approaching each other on the sidewalk would play a game of chicken, one set would be first to veer off course and enter the street to avoid passing the other too closely. It reminded me of swerving away from a boy in kindergarten during recess because he had the “cooties.” In our new normal, the slower family on the walk was made to feel like they had cooties. Maybe they did, or at least feared the possibility.

Yet, the sensation struck personally for me, as one who understands the painful experience of having people steer clear based on your very presence.

A difference I couldn't hide

I was born with a rare genetic condition called ectrodactyly that I passed on to both our sons. Although I joke that the term sounds like I am a type of dinosaur, it simply is a Greek term for missing digits. I only have one finger on each hand (shortened forearms) and one toe on each tiny misshapen foot.

The boys have a similar version of my difference and, all together, the three of us only have 18 digits combined. Once a kid asked me if I missed not having 10 fingers? My reply was instinctive. “How can I miss something I never had?” I manage through it all by making the most of what I do have rather than focusing on what I don’t.

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As a result of our difference, I’ve witnessed strangers whisk their kids away from us, hoping to avoid an embarrassing outburst. Until the pandemic, I’d never been able to explain what it feels like to have people feel uncomfortable around you, try to avoid you, to not want to even touch you.

Although I’m American, my family spent several years of my childhood living in the Middle East and South Asia. Today, an internet search for one-fingered people would yield hundreds of pages of photos and information about people like me. But, back then, I had no way of knowing if I was completely alone in the world or not. Often embarrassed by my condition, I frequently hid my hands in my pockets.

Discomfort that crosses cultures

I discovered, too, that my difference was cause for alarm from the locals. When we lived in Iran, Afghanistan and in Pakistan, street children and homeless adults would approach us for money, take one look at me and let out a yelp while rushing away. I didn’t have to understand what they were saying to know what they meant. To them, I was either contagious or our family was cursed.

Once on a visit to the Taj Mahal, my parents recall people were ignoring the breathtakingly beautiful white marbled mausoleum to stare at me instead. “Tsk, tsk, tsk” was the common refrain of pity I received from passers by. One extremely hot afternoon on the way back to our hotel near Agra, India, we passed a group of people begging on the street. As I leaned to get a closer look, my father whispered the term leprosy in my ear as he squeezed my hand with a tighter grip and began to pull me away while explaining the risks of the condition.

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But as he tugged, I couldn’t help but catch the eye of a young woman whose neck appeared to have patches of discolored skin. When I looked down, I saw that she had fingers on her right hand only and few toes remaining on her feet. Although her face was largely covered with a dark brown cloth that almost resembled a mask, her dark almond-shaped eyes appeared diseased as well, but were focused on my small, disfigured hands. But instead of making me feel uncomfortable by staring, she nodded.

It was in many respects one of my life’s most poignant moments. I finally had discovered someone else that understood the emotional impact of living a life where people are uncomfortable just being near you because of you.

Eventually, let's not keep our distance

The pandemic has given everyone a taste of what it feels like to walk in my shoes and have others keep their distance wondering if you pose a contagious threat. It gets in your own head and can make you doubt yourself. It can feel isolating and demoralizing.

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 Although this horrific experience has taken a great emotional toll on people, I am hopeful that it will yield an unexpected benefit. Perhaps when all this is behind us people will remember how it feels to be the object of fear. Maybe they’ll think twice before they avoid eye contact with someone blatantly different or grab their kid’s hand to cross the street to avoid an undesired encounter.

It occurs to me that as a person who is different, I can draw upon a lifetime of such experiences and report that I survived them all.

I decided to re-read that children’s book that had miraculously escaped my husband’s notice. It reminds me that as we navigate through this unprecedented chapter in history to not be scared. We can’t go over it. We can’t go under it. It looks like no matter who we are or what we look like, we’ve got to go through it (socially distanced) together.

Meg Zucker is a managing director and head of U.S. anti-money laundering at RBC Capital Markets and president and founder of Don’t Hide It, Flaunt It, a 501(c)(3) non-profit that provides national empathy programming in schools. Its mission is to advance acceptance, understanding, tolerance and mutual respect for a person’s blatant or invisible difference. Zucker is at work on her first book.